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¿Cómo Te Sientes Al Respecto?
How Do You Feel About This?
Un miembro de myHIVteam hizo una pregunta 💭

Entonces, estaba leyendo este artículo (que ahora no puedo encontrar para adjuntarlo) y encontré que esta información era interesante y no completamente precisa. Además, no me gusta la frase “LA ETAPA FINAL”. Este es un juego de palabras muy aterrador y muy desconcertante. ¿Cuáles son tus pensamientos?

El SIDA es la etapa final.

Controlar el VIH con medicamentos es crucial tanto para mantener la calidad de vida como para ayudar a prevenir la progresión de la enfermedad. La etapa 3 del VIH… leer más

So, i was reading this article (which now i cant find to attach) and i found this information to be interesting and not fully accurate. Also, i do not like the wording “THE FINAL STAGE”. This is very scary word play and very offsetting. What are your thoughts?

AIDS is the final stage

Controlling HIV with medications is crucial to both maintaining quality of life and helping prevent progression of the disease. Stage 3 HIV, also known as AIDS, develops when HIV has significantly weakened the… read more

publicado 22 de agosto de 2020 (edited)
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Un miembro de myHIVteam

Here is my answer. I was diagnosed with HIV in 1993 and had to go on AZT, Crixivan, and Epivir a few years later. I took myself off them after only a couple of months because of the side effects.

In 2003, I had pneumonia twice. The second round put me in the hospital and my cd4 count was 45. The doctor there put me on meds and I have been on them since.

Here's the thing. Presently, AIDS does not go away by definition. My cd4 count, however, is over 500 and my viral load has been undetectable for several years now.

Yes, I suppose AIDS is the last stage, but no one can tell me how many years are in that stage if you take care of yourself. I mostly eat right and I take my meds every day. I get my vaccines, such as the flu shot and the vaccine for shingles. I am in good health!

I am 60 years old. I was first diagnosed when HIV/AIDS were a death sentence at 33 years old.

Make that last stage last just as long as you want and screw those who are about doom and gloom.

publicado 23 de agosto de 2020
Un miembro de myHIVteam

It doesn't bother me. When I was diagnosed in the hospital,my transfer and admission paper work at the hospital said I was HIV positive. A couple weeks later when I met my Dr. my Dr called it advanced HIV. I sighed in relief like I missed a bullet. It took me a while to figure out that a 19 cd4, wasting and thrush was AIDS. But it is the final stage or stage 3 or 4. People are able to recover these days because of the meds. I can still remember when people went to the hospital with pneumonia and the next thing you heard, was they died. I mean as soon as they found out they was sick. It's scary but it's the course of the virus without medication. As miserable as I was, I claim AIDS.

publicado 23 de agosto de 2020
Un miembro de myHIVteam

Hi Justin, please remember that they're talking about AIDS without treatment. In today's world there are few cases of actual HIV becoming a full-blown AIDS case with medicine.. and your doctor is right you just started medication not too long ago you will be fine. I myself have been diagnosed with AIDS when I first came out because I was very low and I had about VL 9 to 10 million copies and t cells were 110...so they diagnosed me with AIDS and I got all these terrible symptoms and hospitalized but after getting on the right medication, and I tried many, I've been healthy ever since. Much love❤️💛💛💚💙💙💜♥️🤗

publicado 22 de agosto de 2020 (edited)
Un miembro de myHIVteam

An AIDS diagnosis only determines the level of care you will need. Like cancer and everything else we as a society must place labels on everything. I understand what you mean by the way the word things and to those that are not educated on the topic that could prove to be devastating. Its all about education and being well informed and helping others to understand.

publicado 23 de agosto de 2020
Un miembro de myHIVteam

@Un miembro de myHIVteam i appreciate the kind words but, im not freaked out. Im positive always have been. Ive done my research and educated myself. The point i was trying to make was that them wording things that way and not having up to date information is very concerning. The fact that someone who is newly diagnosed and searching for hope and answers could come across that is alarming to me.

publicado 22 de agosto de 2020

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